Here's what's been happening with our little family over the past few days. First, Bonnie has been working on learning to drink from a bottle. This is always a hurdle for CDH babies, and especially those that have been on ECMO and intubated for prolonged periods of time, because of their oral aversion. The way one of Bonnie's occupational therapists put it, "they have to learn to trust again." As in, they have to learn to trust that not all mouth experiences are terrible. Both her occupational therapist and speech therapist spend a *lot* of time trying to provide positive oral stimulation. Anyway, Bonnie has a pretty strong gag reflex, and her oral/facial muscles are weaker than they should be. She's made good progress over the past few days with learning to suck on (and enjoy) he pacifier, and a couple days ago she took some milk from a bottle. She has continued to take a small amount from a bottle once a day since then, and we are sooo so proud of her. Once she has her swallow study done (hopefully next week), they'll be able to work more aggressively on getting her to take all her feeds by mouth.
|Bonnie working with her speech therapist Heather.|
Meanwhile, back at the ranch, Henry decided he wanted to "go fishin'!". Jonathan was outside practicing his casting, and Henry wanted to join in.
We took Henry (along with some friends!) to the Charleston Aquarium yesterday. He had a good time running around from exhibit to exhibit.
|This is a little tube thing in the middle of the lemur exhibit (why are there lemurs in a South Carolina aquarium? Not sure.)|
|And here's Henry in a Jeep thing in the Madagascar exhibit. There were a couple fish involved in this expedition, I promise.|
And here are some pictures of Bonnie from today. She had a big day with all her various therapies (speech, occupational, physical). Physical therapy was the last one of the day. When her therapist put her on her belly for some tummy time, Bonnie promptly fell asleep. Right there in the middle of the floor. She'd had almost no sleep last night, so we just left her there. She slept for three (THREE!) hours. I took a million pictures of this event because it was so funny, and she looked so cute.
|I am a tiny baby in the middle of the floor!|