February 2, 2012: Anatomy scan at 21 weeks gestation revealed a left sided congenital diaphragmatic hernia.
February 24, 2012: Fetal echocardiogram with cardiologist in Greenville. Bee's heart looks good as far as he could tell.
April 18, 2012: Went to Charleston (Medical University of South Carolina--MUSC) to see maternal-fetal medicine doctor, pediatric surgeon, and tour NICU.
April 25, 2012: Based on today's ultrasound, part of Bee's liver is up above the diaphragm. Prior to this, it had looked like only stomach and bowel.
June 4, 2012: Moved (temporarily) from Greenville to Charleston to be near a hospital (Medical University of South Carolina--MUSC) that has ECMO capabilities.
June 7, 2012: Bonnie Brown Helms arrives via C-section at 11:24 a.m. Pink, crying, beautiful.
June 8, 2012: Bonnie is started on ECMO.
June 18, 2012: Chest tube placed on right side to drain pleural effusion.
June 19, 2012: Diagnosed with pneumonia (which ironically we were thankful for since it could account for some of her pulmonary hypertension).
June 22, 2012: ECMO circuit changed.
June 28, 2012: Bonnie is successfully taken off ECMO!
July 1, 2012: Bonnie is started on dialysis, since her kidneys have not yet "woken up" after getting off ECMO.
July 5, 2012: Bonnie has her hernia repair surgery and does *great*!
July 8, 2012: Kidneys seem to kick in. May be able to get rid of dialysis catheter soon (it has stopped working anyway).
July 9, 2012: Momma gets to hold Bonnie for the first time. Great day. :)
July 12, 2012: Bonnie is extubated!
July 19, 2012: ENT evaluation reveals that Bonnie has a paralyzed right vocal cord.
July 24, 2012: Due to abnormal newborn metabolic screens with elevated IRT, Bonnie has to have a chloride sweat test to check for cystic fibrosis. It comes back negative (i.e. she doesn't have CF).
Leslie, Glad to meet you! I'm so glad your baby girl is doing so well. She's adorable! I live near Greenville and would enjoy talking with you about some things. I couldn't find your email address so here I am commenting =)
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