Bonnie turned 16 months old yesterday! Since my last update, she's been a busy girl. She started daycare in August (and we said goodbye to our fabulous nanny Julie), which has been great for her. She is now a proficient walker--and runner...and climber--so she was discharged from physical therapy a few weeks ago. She started speech therapy two-ish months ago, and has made some really good progress there. She is understanding a lot of what is said to her, and she's starting to say a few words as well. Her main communication right now is sign language, and she's so flippin cute when she signs. She doesn't know a ton of signs, but the ones she does know revolve around eating. That's right! Eating! My non-eater is eating! She's been in feeding therapy since she was about four months old, and it all finally started to click about three months ago. Right now she gets about 70% of her calories through her g tube, but we are working closely with her nutritionist and are actively weaning her from the tube. The other morning I went to get her out of bed, and the first thing she did was the sign for "eat." So so proud of my baby!
|
Bonnie hearts you. |
|
Poor Zander had to wear a cone for awhile. He was further tormented by the baby. |
|
Enjoying a nice breeze. Or trying to fly. |
|
Unlocked the cage all by herself, climbed in, and had a chat with the dog. |
|
Playing in the water! |
|
This moment *right here* is when Bonnie caught on to the whole food thing. She's munching on bacon at Cracker Barrel. |
|
Bacon day. |
|
Sweetness with Dado. |
|
Eating crackers! |
|
Eating Cheerios! |
|
She was having trouble getting around on her little trike, so big brother helped. |
And these are from today. She was helping me unload the dishwasher...and eating :)
Leslie....
ReplyDeleteHappy sixteen months, Bonnie!! Here's to many, many, many more!! ;)
"She is now a proficient walker--and runner...and climber--so she was discharged from physical therapy a few weeks ago.". Way to go, Bonnie!! ;-D
"She started speech therapy two-ish months ago, and has made some really good progress there. She is understanding a lot of what is said to her, and she's starting to say a few words as well. Her main communication right now is sign language, and she's so flippin cute when she signs.". Good!! ;-D
"My non-eater is eating! She's been in feeding therapy since she was about four months old, and it all finally started to click about three months ago. Right now she gets about 70% of her calories through her g tube, but we are working closely with her nutritionist and are actively weaning her from the tube. The other morning I went to get her out of bed, and the first thing she did was the sign for "eat." So, so proud of my baby!". Thanks be to God!! ;-D
I have written this before. But Bonnie is--by far!!--the chubbiest CDH child who I have "met" Online through Blogging!! Which is a positive!! Trust me!! I was never as chubby as Bonnie!! I am so very glad that she is eating!! ;)
Aw!! I "heart" you, too, Bonnie!! ;-D
--Raelyn
Thanks Raelyn! Her nutritionist says she's a "calorie conserver", meaning she doesn't need a lot of calories to stay chubby. :)
DeleteLeslie....
ReplyDeleteHappy Halloween!! ;-O
--Raelyn
Leslie....
ReplyDeleteIt has been one month since you last posted on this Blog!! I am missing Bonnie, my Kindred Spirit CDH Friend!! Are you getting excited for Thanksgiving? ;)
--Raelyn
Leslie, Bonnie and family....
ReplyDeleteHappy Thanksgiving, Friends!! ;)
--Raelyn
Leslie....
ReplyDeleteIt has been over one month since you last posted on this Blog!! I am missing Bonnie, my Kindred Spirit CDH Friend!! Did you enjoy your Thanksgiving? My goodness, where does the time escape to? Christmas is seemingly right around the corner!! ;-D
--Raelyn
Leslie, Bonnie and family....
ReplyDeleteJust stopping by to wish you a Merry Christmas!! ;)
--Raelyn
I just posted a fictional children's story about this character who was born with CDH on my Blog, "Minuscule is good!". { http://writing--projects.blogspot.com/ } Check it out if you would like!! And maybe leave a comment so I know you visited? Raising CDH awareness with something I can do.... Writing!! I hope you enjoy it!! ;)
ReplyDelete--Raelyn
Leslie....
ReplyDeleteIt has been three months since you last posted on this Blog!! I am missing Bonnie, my Kindred Spirit CDH Friend!! I hope your Christmas was Merry!! Happy 2014!! ;)
--Raelyn