Also, I'm trying to remember that when Bonnie's home, I am her *mother*, not her *nurse*. The Helms house isn't turning into a hospital. I plan on enjoying having my child home and not letting her medical needs overwhelm us. And really, she's not *that* medically complex. She doesn't eat, and she's on three medications. That's totally manageable.
Bonnie had another echo yesterday, because they discontinued her sildenafil (Viagra!), which was started back in the dark days of ECMO to help with her pulmonary hypertension. They wanted to see how her heart looked without the medicine. Turns out, it looks *great*. No evidence of pulmonary hypertension. Miracle. Pulmonary hypertension was her ticket to ECMO back in the day. It's a beast. And it is *gone*. Praise God. Also, they checked her urine yesterday and found that it had blood and protein in it. This is likely a lingering effect of when she was in kidney failure, but we'll follow up with the pediatric nephrologist to keep an eye on it.
Things are likely to be kind of crazy for the next few days, but I will update with homecoming pictures when I can. Until then, here are some cute pictures of Bonnie enjoying her pacifier (formerly a rare event, but becoming more common--which is a good sign for future eating endeavors!). Please pray for an uneventful (3+ hour) trip home tomorrow and a smooth first night back on the home front.