A couple days after that excitement, I had an appointment with the MFM folk. Nothing new to report there, other than Bee is up to an estimated 5 lb 7 oz! Her liver (well, part of it) is still up, but sweet Dr. Chapman did say that not seeing it there until the third trimester is better than if they'd been seeing it up there all along. And yet again, we discussed how none of this has any sort of reliable predictive value for how Bee will do once she's born.
I want to thank you all for your prayers and positive thoughts as we've gone through this process. I can't say enough about how amazing and supportive my coworkers have been. Miss Anne (first mentioned in this post) even got a prayer chain going the other day when I was having all those contractions. And many thanks to all the CDH mommas who commented on my last post (when we first found out that Bee's liver was up) to send encouragement and prayers.
In other news of the "God is so good" variety:
- We've found somebody to house sit for us while we're gone, which includes taking care of our gigantic (but oh so sweet) German Shepherd Zander. This is a *huge* blessing.
- The daycare that Henry goes to is helping us out in a big way. Since he likely won't be there for the majority of the summer, they've told us that for the weeks he's not there, we won't have to pay. (Normally we'd have to, to hold his spot...which we would want to do, because we love that place!)
- I spoke with some folks from HR who have assured me that it shouldn't be a problem getting my insurance to cover my delivery in Charleston at the "in-network" rate. Again, huge blessing.
So thank you to everyone who has helped us in any sort of way with your prayers, support, and encouragement. Jonathan and I are humbled by your generosity and thoughtfulness. Please keep praying for our sweet little girl, that her lungs would be big and strong and functional once she's born. June 7th keeps getting closer and closer...
Leslie, I replied last time but then something went wrong and my post wouldn't go through. (Thanks to new computer + not-so-bright user, I'm sure.) I wanted to echo the hope from other CDH mamas about the liver being up. Sam's liver was all the way up. They could see it up at the 22 week MRI. They could see no lung and predicted none could grow with stomach, bowel, liver and spleen all in his chest.
ReplyDeleteThey were wrong. When Sam had his repair surgery, his surgeon pulled the intestine out of his chest and his *lungs* inflated. He grew not one, but two. The right lung was full sized, the left lung was 2/3 of full size. He is 15 months old now and he rocks.
I know it is so hard. I have been thinking of you and Abby this week in this scary waiting time. Just try not to despair about that danged liver eeking up in there. :)
Happy to get your updates. And extra happy to know that you have people around you loving you up (yay daycare folks and HR folks!).
Corinne
Mama to Samuel, LCDH, Feb1/11
So much good news Leslie. Thankful that plans are falling into place and that so many people are looking out for your sweet family. We recently had a patient who was found to have CDH at 3 MONTHS OF AGE...it was not seen on prenatal ultrasound and baby was asymptomatic until age 3 months and this baby's liver was up! Sounds crazy right? All things are possible, praying for Baby Bee's safe arrival on June 7th. Love and Hugs to you.
ReplyDelete