tag:blogger.com,1999:blog-3033460936977120332.post1645237494066575634..comments2023-06-27T06:58:32.027-04:00Comments on Baby Bee's Journey: Update at 34 weeksAnonymoushttp://www.blogger.com/profile/17342433042043500946noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3033460936977120332.post-38255860329879051112012-05-06T14:45:10.702-04:002012-05-06T14:45:10.702-04:00So much good news Leslie. Thankful that plans are ...So much good news Leslie. Thankful that plans are falling into place and that so many people are looking out for your sweet family. We recently had a patient who was found to have CDH at 3 MONTHS OF AGE...it was not seen on prenatal ultrasound and baby was asymptomatic until age 3 months and this baby's liver was up! Sounds crazy right? All things are possible, praying for Baby Bee's safe arrival on June 7th. Love and Hugs to you.Ruthhttps://www.blogger.com/profile/12213140168814373339noreply@blogger.comtag:blogger.com,1999:blog-3033460936977120332.post-44937745778021740502012-05-05T19:17:49.385-04:002012-05-05T19:17:49.385-04:00Leslie, I replied last time but then something wen...Leslie, I replied last time but then something went wrong and my post wouldn't go through. (Thanks to new computer + not-so-bright user, I'm sure.) I wanted to echo the hope from other CDH mamas about the liver being up. Sam's liver was all the way up. They could see it up at the 22 week MRI. They could see no lung and predicted none could grow with stomach, bowel, liver and spleen all in his chest. <br /><br />They were wrong. When Sam had his repair surgery, his surgeon pulled the intestine out of his chest and his *lungs* inflated. He grew not one, but two. The right lung was full sized, the left lung was 2/3 of full size. He is 15 months old now and he rocks. <br /><br />I know it is so hard. I have been thinking of you and Abby this week in this scary waiting time. Just try not to despair about that danged liver eeking up in there. :)<br /><br />Happy to get your updates. And extra happy to know that you have people around you loving you up (yay daycare folks and HR folks!).<br /><br />Corinne<br />Mama to Samuel, LCDH, Feb1/11Corinnehttps://www.blogger.com/profile/01570660912330119673noreply@blogger.com